Changed Behaviours Special Interest Group (SiG)

Project Investigators Dr. Claire Burley, Prof. Henry Brodaty AO

Partners Dr Nadeeka Dissanayaka (University of Queensland)

Program Overview:

The ‘Changed Behaviours Special Interest Group (SiG)’ (previously known as the ‘Behaviours and Psychological Symptoms associated with Dementia (BPSD*) SiG’) started in early 2019 and has over almost 200 members from diverse backgrounds, including people living with dementia, family members, care providers, government workers, health professionals and researchers. In 2019 they held their first roundtable discussion at the Australian Dementia Forum in Hobart and met for the first workshop (with over 100 attendees) in Sydney. Please see links below for resources from our previous events.

The Anxiety and Depression in Dementia Research Network (ADDResearch) was formulated in collaboration with Dr Nadeeka Dissanayaka at the University of Queensland in 2020.

Aims of SiG and research network:

  1. To foster research into improving quality of life for people living with dementia
  2. To encourage research implementation
  3. To encourage collaboration in research and implementation between people living with dementia, families and care partners, service providers, government and policy makers and researchers
  4. To provide a forum for discussion that is inclusive of people living with dementia, families and care partners

Please email c.burley@unsw.edu.au to find out more information and if you are interested in joining either the Changed Behaviours SiG and/ or ADDResearch.

* Please see article published in the International Journal of Geriatric Psychiatry, Language paradigms when behaviour changes with dementia: #BanBPSD (Cunningham et al. 2019). For more information about preferences on terminology, please consult the Dementia Language Guidelines produced by Dementia Australia.

‘The DCRC will be ceasing operations Dec 2nd  2021. However, the SiG and ADDResearch Network will be relocated to another dementia organization and future events will be organized. Details will be provided when confirmed. Please email c.burley@unsw.edu.au or n.dissanayaka@uq.edu.au (for ADDResearch) if you would like to be kept informed and are not already a member of the group.’


Upcoming events:

2021 Dementia Prevention Conference – 28 October, 2021

On behalf of the Dementia Centre for Research Collaboration (DCRC) we invite you to join us for the 2021 Dementia Prevention Conference.

The 2021 Dementia Prevention Conference will be held in Randwick, Sydney and/or via Zoom on 28th October. We invite you to join us to hear the most up to date research from around Australia with special guest Professor Laura D. Baker as keynote speaker.

Register now for FREE to be a part of this exciting event! Abstract submission will close on 10th August 2021.

Cost: Free
Venue: Neuroscience Research Australia & Online via Zoom

Symposium 3: Anxiety & Depression with ADDResearch – Fri 17 September, 2021

The Anxiety and Depression in Dementia Research (ADDResearch) Network international symposium aims to bring together experts from diverse backgrounds (people with lived experience, clinicians and researchers) to present their perspectives, including the latest research from across the globe, focused on helping people living with dementia who experience depression and/ or anxiety.

Cost: Free
Venue: Zoom Online Webinar

Online workshop: ‘Making person centred care a reality’ – Fri 19 November, 2021

After the success of our 2020 online symposium, The DCRC is pleased to announce three symposia and one online workshop in 2021.

Experts in each area will be invited to speak and we are also inviting abstract submissions. If you would like to present your research at at this event please email your abstract (250 words max) to c.burley@unsw.edu.au by Friday 24 September, 2021

If you are someone with lived experience of dementia who would like to talk about your experiences please get in touch!

Cost: Free
Venue: Zoom Online Webinar

Past Events

Symposium 1: Disinhibited Behaviours – Fri 18 June, 2021

Disinhibited behaviours are actions which seem tactless, rude or even offensive. They occur when a person's words and/or actions don’t follow the generally understood social rules about what or where to say or do something.

Cost: Free
Venue: Zoom Online Webinar

Symposium 2: Sleep Disturbances – Fri 16 July, 2021

Sleep disturbances are often experienced by people living with dementia and can negatively impact their quality of life. This symposium aims to bring together experts from diverse backgrounds (people with lived experience, clinicians and researchers) to present their perspectives, including the latest research and clinical guidelines.

Cost: Free
Venue: Zoom Online Webinar

Changed behaviours and psychological symptoms associated with dementia: Two Online Symposia

The Dementia Centre for Research Collaboration (DCRC) has organised two online symposia to take place in November 2020. You can register and submit an abstract for FREE here. Please see details below and attached poster. You can register to attend both or just one of the two.

Cost: Free
Venue: Online

Resources

Please click on hyperlinks below to access special interest group resources.

Webinar: Symposium 1 – Changed Behaviours – Fri 18 June 2021

Presented by DCRC & DTA

Disinhibited behaviours are actions which seem tactless, rude or even offensive. They occur when a person’s words and/or actions don’t follow the generally understood social rules about what or where to say or do something.

Recorded Friday 18 June, 2021
Presented by Dementia Centre for Research Collaboration (DCRC) & Dementia Training Australia (DTA)
Running Time: 2:22

Webinar: Day 1 – Changed behaviours and psychological symptoms associated with dementia

In November 2020 two DCRC online symposia took place for people interested in dementia research on improving care and reducing changed behaviours and psychological symptoms associated with dementia.

The aims of Day 1 of the symposia were to discuss research activities involving changed behaviours and/or psychological symptoms associated with dementia and care for people living with dementia. This event forms part of the special interest group led by Dr Claire Burley

Recorded Wednesday, 4 November 2020
Presented by Dementia Centre for Research Collaboration (DCRC)
Running Time: 02:30:00

Webinar: Day 2 – Anxiety and Depression in Dementia Research Network (ADDResearch)

In November 2020 two DCRC online symposia took place for people interested in dementia research on improving care and reducing changed behaviours and psychological symptoms associated with dementia.

The aims of Day 2 of the symposia were to launch the new ‘Anxiety and Depression in Dementia Research Network (ADDResearch)’ and the focus was on research into anxiety and depression in dementia. This network is a collaboration between UNSW Sydney and the University of Queensland and is co-led by Drs Claire Burley and Nadeeka Dissanayaka.

Recorded Wednesday, 11 November 2020
Presented by Dementia Centre for Research Collaboration (DCRC) & University of Queensland
Running Time: 02:30:00

Previous events:

DCRC Symposia, Nov 2020, Online
BPSD Workshop, Nov 2019, Sydney: Sustaining Desirable Practice Change Workshop Slides
BPSD Roundtable Discussion, June 2019, ADF 2019, Hobart