Lived Experience Expert Group

DCRC Lived Experience Project

The Dementia Centre for Research Collaboration (DCRC) partnered with people with lived experience of dementia as Lived Experience Experts.

These partnerships aimed to ensure that DCRC research was performed with and by people with lived experience of dementia rather than the research being ‘on’, ‘about’ or ‘for’ them.

We wanted people with lived experience of dementia to help set the DCRC research agenda and give their expert advice to dementia research projects. This helped the DCRC to provide more relevant research evidence and in turn, helped to put that evidence into practice.

The aims of the DCRC Lived Experience Expert Group were to:

  • Support a group of people living with dementia and their care partners to provide advice to the DCRC Executive regarding the Centre’s projects and priorities.
  • Build a database of people with lived experience who were interested in being involved research in different ways.
  • Provided training and support to people living with dementia and their care partners wishing to be involved in research projects as a co-investigator or on review panels.

If you would like to take part in a research study as a participant, please visit the Step Up for Dementia website.

* People with dementia, families, care supporters, health and social care professionals, researchers, policy makers and the wider community are often also called consumers of dementia research.

Deborah Brooks, Project Coordinator

Elizabeth Beattie, DCRC Director

Henry Brodaty, DCRC Director

Jay Dave, Lived Experience Expert

Leanne Jack, Lived Experience Expert

Theresa Flavin, Lived Experience Expert

Dubgh Taylor, Lived Experience Expert

Tiffany Jessop, DCRC Manager and researcher

Margie MacAndrew, DCRC researcher

Ruth Peters, DCRC researcher

Theresa Scott, NHMRC Researcher

Jane Thompson, Lived Experience Expert