Special Interest Groups – Changed behaviours and psychological symptoms associated with dementia

Project Investigators Dr. Claire Burley, Prof. Henry Brodaty AO, Dr Nadeeka Dissanayaka (University of Queensland)

Partners

Program Overview:

The Behaviours and Psychological Symptoms associated with Dementia (BPSD*) special interest group started in early 2019 and has over 100 members from diverse backgrounds including people living with dementia, family members, care providers, government workers, health professionals and researchers. In 2019 they held their first roundtable discussion at the Australian Dementia Forum in Hobart and met for the first workshop (with over 100 attendees) in Sydney.

The Anxiety and Depression in Dementia Research Network (ADDResearch) was formulated in collaboration with Dr Nadeeka Dissanayaka at the University of Queensland in 2020.

Aims of interest group and research network:

  1. To foster research into prevention and management
  2. To encourage research implementation
  3. To encourage collaboration in research and implementation between people living with dementia, families and care partners, service providers, government and policy makers and researchers
  4. To provide a forum for discussion

Please email c.burley@unsw.edu.au to find out more information and if you are interested in joining.

* ‘Behaviours and psychological symptoms associated with dementia (BPSD)’ is used respectfully for communication between professionals, people living with dementia and families (see Cunningham et al. 2019, IJGP). For more information about preferences on terminology, please consult the Dementia Language Guidelines produced by Dementia Australia.


Upcoming events:

Symposium 1: Disinhibited Behaviours – Fri 18 June, 2021

Disinhibited behaviours are actions which seem tactless, rude or even offensive. They occur when a person's words and/or actions don’t follow the generally understood social rules about what or where to say or do something.

Cost: Free
Venue: Zoom Online Webinar

Symposium 2: Sleep Disturbances – Fri 16 July, 2021

After the success of our 2020 online symposium, The DCRC is pleased to announce three symposia and one online workshop in 2021.

Experts in each area will be invited to speak and we are also inviting abstract submissions. If you would like to present your research at at this event please email your abstract (250 words max) to c.burley@unsw.edu.au by Fri 18 June, 2021

If you are someone with lived experience of dementia who would like to talk about your experiences please get in touch!

Cost: Free
Venue: Zoom Online Webinar

Symposium 3: Anxiety & Depression with ADDResearch – Fri 17 September, 2021

After the success of our 2020 online symposium, The DCRC is pleased to announce three symposia and one online workshop in 2021.

Experts in each area will be invited to speak and we are also inviting abstract submissions. If you would like to present your research at at this event please email your abstract (250 words max) to c.burley@unsw.edu.au by Fri 30 July, 2021

If you are someone with lived experience of dementia who would like to talk about your experiences please get in touch!

Cost: Free
Venue: Zoom Online Webinar

Online workshop: ‘Making person centred care a reality’ – Fri 19 November, 2021

After the success of our 2020 online symposium, The DCRC is pleased to announce three symposia and one online workshop in 2021.

Experts in each area will be invited to speak and we are also inviting abstract submissions. If you would like to present your research at at this event please email your abstract (250 words max) to c.burley@unsw.edu.au by Friday 24 September, 2021

If you are someone with lived experience of dementia who would like to talk about your experiences please get in touch!

Cost: Free
Venue: Zoom Online Webinar

Resources

Please click on hyperlinks below to access special interest group resources.

Webinar: Day 1 – Changed behaviours and psychological symptoms associated with dementia

In November 2020 two DCRC online symposia took place for people interested in dementia research on improving care and reducing changed behaviours and psychological symptoms associated with dementia.

The aims of Day 1 of the symposia were to discuss research activities involving changed behaviours and/or psychological symptoms associated with dementia and care for people living with dementia. This event forms part of the special interest group led by Dr Claire Burley

Recorded Wednesday, 4 November 2020
Presented by Dementia Centre for Research Collaboration (DCRC)
Running Time: 02:30:00

Webinar: Day 2 – Anxiety and Depression in Dementia Research Network (ADDResearch)

In November 2020 two DCRC online symposia took place for people interested in dementia research on improving care and reducing changed behaviours and psychological symptoms associated with dementia.

The aims of Day 2 of the symposia were to launch the new ‘Anxiety and Depression in Dementia Research Network (ADDResearch)’ and the focus was on research into anxiety and depression in dementia. This network is a collaboration between UNSW Sydney and the University of Queensland and is co-led by Drs Claire Burley and Nadeeka Dissanayaka.

Recorded Wednesday, 11 November 2020
Presented by Dementia Centre for Research Collaboration (DCRC) & University of Queensland
Running Time: 02:30:00

Previous events:

DCRC Symposia, Nov 2020, Online
BPSD Workshop, Nov 2019, Sydney
BPSD Roundtable Discussion, June 2019, ADF 2019, Hobart